• chicken@lemmy.dbzer0.com
    link
    fedilink
    arrow-up
    6
    ·
    15 hours ago

    Stuff like this makes me wonder, at what point is it bad enough that the truisms about leaving medical advice to licensed healthcare professionals become wrong, and everyone would be better off turning to anything else instead of engaging with the system? Are we not there yet? How much further would there be to go?

    • pieland@piefed.socialOP
      link
      fedilink
      English
      arrow-up
      8
      ·
      edit-2
      14 hours ago

      this might be an extremely unpopular and controversial opinion, but the solutions are gate-kept by the system.

      need a doctor and insurance’s permission to get the test to confirm a diagnosis. some labwork can be ordered online independently, but it’s limited and extremely expensive. as far as i know you can’t get most imaging other than a DEXA without a doctor.

      say you feel confident about a diagnosis for whatever reason… well now the only way to get that medication for that condition… is with a prescription. pirate pharmacies exist, but the medications they carry are limited.

      i’d have so much less of a problem with this stuff being “gate-kept” (because i DO understand the reason behind the “gate-keeping”) if doctors actually did anything.

      The Sailor Moon “My job here is done” meme. The first panel depicts a character, labelled as “DOCTOR” in this meme, saying “My job here is done.” The second panel depicts a character, labelled as “PATIENT”, saying “But you didn’t do anything.” In the third panel, the character labelled “DOCTOR” leaves the scene dramatically.

    • stephen@lazysoci.al
      link
      fedilink
      English
      arrow-up
      8
      ·
      18 hours ago

      I’ve had a certain person accused of a certain thing as my lock screen for about a year because of how much I hate it. Maybe we’re already maxed out and not the target audience for this.

      • pieland@piefed.socialOP
        link
        fedilink
        English
        arrow-up
        12
        ·
        edit-2
        17 hours ago

        i posted it and i’m not the target audience… i’m experiencing it and doing everything in my power to prevent it from killing me.

        and as someone very ill living below the poverty line, i don’t have a lot of power.

        sharing this video is one thing i have the power to do, at least.

        i hope it’ll gain way more traction. most people need to hate it a lot more than they do. it has to be such a strong hatred that there’s no choice but to act.

        • stephen@lazysoci.al
          link
          fedilink
          English
          arrow-up
          4
          ·
          9 hours ago

          I think my comment, and the person I responded to, were being a bit … light hearted (not sure if that’s the right term) about it.

          Speaking for myself, don’t let use dissuade you in any way at all. More Americans need to be:

          1. aware of how shitty the for profit medical system is. It’s the most expensive healthcare in the world and not even close to the top in healthcare outcomes.
          2. Aware that countries much poorer that it dignify all of their citizenry with healthcare. (And zero countries that have done so have ever gone back on that choice)
          3. Much more vocal, including in deciding who to vote for, about ending the predatory, immoral profit imperative in healthcare.

          Personally I don’t think America can vote its way out of a damn thing, but the corporate propaganda seems to be so terrifically good at getting people I know and care for who I believe have fully functioning brains to believe that somehow this shitty healthcare system is the best in the world.

          Thank you for posting the video.

          • pieland@piefed.socialOP
            link
            fedilink
            English
            arrow-up
            2
            ·
            edit-2
            1 hour ago

            again, this isn’t an attack on you specifically, i’m just explaining why i can no longer see it as anything other than malice.

            just had this shit appear on my timeline. not old news, he’s doing this shit again. and people in the comments section CHEER for this.

            i’m seeing this after i just contacted a suspicion of cancer clinic about the uterus i have that is the size it would be if i were pregnant and has not stopped bleeding since january 6th, that TWO radiologists - MDs - have said “hey this looks like cancer and needs to be biopsied” and my obgyn is just sitting on her dickhole because cancer is too rare for someone my age. i also only know of this clinic because my aunt - who i share a lot of medical conditions with - currently has fallopian tube cancer.

            the clinic asked if she was an obgyn or an obgyn-onc and when i said obgyn they weren’t surprised.

            but then they said i can’t see them without a referral from my primary.

            so i need to hope my primary has a reason to feel my obgyn is an idiot and i am deserving of said referral.

            otherwise, my obgyn went on maternity leave in the spring, and after my recent ultrasound showing shit getting way worse and spreading, i have now been referred to another obgyn that i will see on january 16th to discuss a biopsy. and that obgyn is currently on vacation until january 1st, so she can’t even just look at my ultrasound and say “you know what? maybe this shouldn’t wait”

            i’m sick, been bleeding for a year, my body struggles with keeping nutrients at baseline, im losing nutrients constantly, im weak, there’s a chance i’ve got cancer stealing my nutrients now and… they’re celebrating that he’s going out of his way to make me, and people like me, starve.

            good people don’t do that.

          • pieland@piefed.socialOP
            link
            fedilink
            English
            arrow-up
            3
            ·
            5 hours ago

            i’m not trying to be rude or disrespectful, but i can no longer believe in fully functioning brains or corporate propaganda.

            i’ve received so much abuse for being sick because of people who worship this system. that their tax dollars are paying for a “lazy fuck” like me.

            before i became this sick i got a full ride to a genetics program at one of the top schools in the world and even while getting sicker i had a lot of extreme successes until i became almost completely bed-bound.

            i have autism, adhd, and developmental delays and i am very insecure about being “stupid” and weak, and that has made being a workaholic my identity, and it has made it a requirement for me to be successful because i struggle to love myself otherwise. i always have the need to prove to others and myself that i’m worthy of something. to lose all of that has been extremely traumatic, and society regularly puts salt on the wound. they don’t care what i’ve done. they care that it’s a fact that i have “chosen” to be lazy now and i am stealing their hard earned tax dollars.

            most of my family shit talks me. i have lost friends. just this month a former friend who pretended to be supportive threw it in my face, suicide baited me, and told me i was a waste of space.

            i literal have a caregiver from the department of rehab as part of a program from preventing me from going to a nursing home. they do not take mental illness into consideration. i was approved on physical illness alone. the interview to go over my health issues took two hours. i was told it normally never exceeded 45 minutes. and i nearly died years waiting to be approved for this as well.

            i also haven’t been approved for disability (which i know, wild, the government decided im sick enough to be in a nursing home but also i can work? ok), so i live off of $500 a month from the part of my family that has a soul. as you can imagine, that does not go very far. and people don’t realize that there are a lot of things medicaid does not cover that sick people still need to pay for to live. i also have a senior cat with medical needs that are getting more expensive.

            i keep begging my body not to die because she needs me. my body keeps begging me to die.

            but tldr, after what i’ve been through, i really don’t like those people anymore or think they have a soul.

            • 🔍🦘🛎@lemmy.world
              link
              fedilink
              English
              arrow-up
              2
              ·
              2 hours ago

              We live in a world too full of heartless people. You matter, regardless of your accomplishments, medical status, or capacity to contribute to capitalism. I don’t know why anyone would have difficulty seeing that. Add my voice to yours when addressing your body’s wishes.

              Thank you for sharing your experiences and the video above. I’ve had generally positive experiences with healthcare here in the US, and it’s tragic so many people have stories like these. I hope you’re at least getting better care than the mom in the video.

  • Iunnrais@lemmy.world
    link
    fedilink
    arrow-up
    2
    ·
    15 hours ago

    I hate it enough I can’t return from being an expat because of it. I guess you could say that if I hated it more I’d do more to actively fight it, but I kinda feel powerless there. I’m not really a leader. I don’t feel like my inability to fight it more makes me hate it less.

  • FluidBeef@quokk.au
    link
    fedilink
    English
    arrow-up
    1
    arrow-down
    1
    ·
    14 hours ago

    I’m indifferent to it. I figure it must work well enough for them or they’d change it to a more modern system.